Friday, November 9, 2012

Day 1: Anticipating Pain is as Difficult as Remembering It!


Left Jaw Pain: 4/10
Right Jaw Pain: 8/10
Hip Pain: 3/10 (only when vomiting)
Inconvenience factor: 15/10


I don't want to dwell on my time in ICU too much. It's not pleasant and I can't see it serving much purpose.....unless one of you is a budding gore movie writer and needs some material! But if you are squeamish - maybe skip this bit.

I remember staring at the clock. 7:27. I assumed this was PM. I was awake....instant relief washed over me. Then every other sensation started tuning in looking for attention. Oh wow. This was not going to be a fun ride I could tell that already. I flashed in and out of consciousness for the next 12 hours with varying degrees of pain, discomfort, agitation and most of all nausea. Sometimes I wonder which is worse. Pain or Nausea? They were fighting it out for the title that night. My first spew was after about 10 mins of consciousness. I must let you know that vomiting becomes an advanced manoeuvre when your teeth are held tightly together with elastics (allowing only a few mm of separation). Adopt foetal position on the left hand side (I was very quick to discover that the right side of my head was far more painful for some reason) and wretch. Oooh....Ow...my hip! Put hand on hip, cough, wretch into bag again. Delightful! 

Removing of the nasal intubation tube had left my nose in a bit of delicate state so the first big heave caused my nose to bleed. And well, not really stop. So the solution was to tape a big bung of bandage under it. I must have been pretty as a picture at this point. Then I remember pain in my arm, I am guessing subcutaneous drug of some description and I was gone again. 

I would wake try and cope with the incessantly queasy stomach. Beg the nurse for anti-nausea. Puke up blood in bag when I got it right and all over the sheets, when I missed. The taste, sight and smell is not something I wish to repeat in a hurry let me assure you.

It's all become a bit of a flash back picture show. Here are some highlights: 

I recall being extremely agitated a few times. Once my legs felt tied together and adopting a functional foetal position was becoming impossible. I told the nurse, well tried to, I can't imagine my speech was very good right then and I couldn't understand why my legs wouldn't work. Eventually, eventually, after 3 attempts to communicate with her she worked out my problem when I literally ripped the sheets from my legs. They had attached some pads to my calves and thighs to massage them (presumably to keep the blood flowing). In reality they were horribly irritating and had woven into a tangled mess of velcro straps which had effectively hog-tied me. She kindly set me free! 

After 3 or 4 bouts of yakking, and lots of begging for drugs, they told me they had to stop giving me anti-nausea as I had swallowed a lot of blood during surgery and that blood in the stomach does bad things so it was just better if I brought it up. Geez Great! One for the bucket list! 

At one point an angel actually appeared (Thanks Emma). I could have kissed her. She listened to me - no idea if she knew what I said but she gave me the low down. Told me I was in step down (a good sign). She'd checked the charts and I was doing well and in very good hands. She told me she'd decided not to play paparazzi as requested as I look, well 'less than my best' and blamed the Betadine! :) She then squeezed my arm gently and flew away. I closed my eyes and rested peacefully.

Peacefully that is, until I was visited by the devil. I had firmly adopted the foetal position so that blood could flow out of my bleeding nose onto the bandage rather than down the back of my throat. Even in my drugged state, I knew that at the end of my throat is the oesophagus which leads to my stomach. No more blood for there, thank you very much! The cupid faced, motherly looking Devil, wanted me to lie on my back. I refused. She tried harder. No!!!! Apparently she was anxious about me getting bed sores. WHAT!?!?! I've only been here a few hours. I'd rather a few freaking bed sores than more blood puking right now lady!!! Not a hard decision (not that I've ever had bed sores so maybe I am doing them a disservice)! It was an epic battle of wills that lasted for more than 2 hours, but no amount of cajoling or devil treachery was going to trick me into lying on my back again!!!!

There is more but I think you get the idea. It was no Caribbean cruise adventure. 

I recall starting to feel vaguely in control about 8-9am the next morning. The nausea had subsided a bit, my nose had stopped bleeding, those damn massage pads were removed, the devil's shift was over and I could hold focus on things for more than a few minutes at a time. Now I was just overwhelmingly tired. 

Around 10:30am I think, they placed me on a wheelchair, took me to a bathroom and made me presentable. It took awhile - I think I was pretty mucky! Upon my return my bed was snowy white again, I was handed my gown, a fresh crisp sparkling pin-stripe number and my hair was brushed. What was this? Had I actually managed to remain human? Oh thank goodness for that! It was, however, all too much effort. I slept. I remember being woken with the news that my chariot to Q5 ward had arrived. 

Finally, I knew that everything would be okay.
The Rock was waiting for me. :) A few friends and family dropped in with cards, flowers, well wishes and plenty of sympathy. And so began the adjustment to life in the ear, throat and nose ward of the hospital.
There were 3 others in my ward, a young lass who had had surgery on her top jaw (presumably the owner of the blood splat on the lamp), the lovely Mr Wilson who had diabetes and a tracheotomy and couldn't talk but seemed to manage to communicate quite successfully with a pen and paper and by clicking like a dolphin. The other bed, I didn't meet, just heard (the noises did not encourage me to explore further).

The routine of the ward was regular as clockwork. Periodic  patient observations (blood pressure, oxygen saturation and ear temperature), 6 hours panamax dispension, harder drug dispension, food dispensing.....repeat.  The lights, the noises and the constant interruptions to rest made the experience all a bit overwhelming as by now I was utterly exhausted. But luckily for me, I found that a good old oxycodene hit, sent me off to sleep in about 5 mins. It was night night by 8pm. 



Thursday, November 8, 2012

Mission. Success.

The hacker is back!

I've had word from a reliable source that operation 'double jaw surgery' has been a success. Sonja has been released from her mission at 1600 hrs this afternoon and is now in recovery.

Watch this space.

Phew!

Day 0: Find a Solid Rock and Focus on It - Not on the Blood Spot!

The day had arrived. Surgery day. My brain knew logically what was coming next. I knew what the surgery was going to be. I had looked at all the diagrams repeatedly over the past months. I had been in pain before so knew what to expect there too. I had mountains of liquid food at home and so many good people around me, that I was sure I could handle all of this process. So long as I simply woke up. That was what I wanted. Sure, I could assume it would be fine - it most likely would be - but there is no unwritten rule of certainty and sometimes, just sometimes, it's not fine. I have so much to live for, that conquering the fear my own mortality was difficult to say the least. So on the morning of the 8th of November at 7:30am after checking in and lowering myself into a hospital chair to wait for up to 5 hours, my hardest challenge began. Beating my head. Finding that place of Zen and accepting that what will, be will be. I have no control.

Now I suggest that if you ever go down the road of surgery, as weird as it sounds, you should categorise your friends - trust me, it will help you to do it in advance! Sort the control freaks from the mothers, the doers from the feeders, the rocks from the haters of hospitals, and the entertainers from the worriers. Work out the strengths of each and what they can give you and use each to your advantage.

Now whatever you do....DO NOT take your CONTROL FREAK friends to hospital with you on the morning of your operation! They may well sulk at being left behind and hijack your blog (which is actually highly entertaining Ms Scallywag) but leaving them home ensures your blood pressure remains calm and there will be no throwing you in the boot of their car hightailing it out of town when they call your name to pop on your backless gown! Be sure to take your ROCK. They will ride that roller coaster next to you without so much as showing a crack. They hold your hand when you need them to. Silently wipe your tears and give you a hug when it all gets too much. Offer words of wisdom and words of mirth. They'll distract you from the fact that you've not eaten for 14 hours and tell you the coffee is rubbish even when it smells amazing. They will simply explain that there is nothing more to be done. Encourage you to surrender to the process and get on with getting better on the other side. 

I am not sure where those 3.5 hours went (the power of the Rock) but soon enough I was off to don my pin-stripe backless gown, compression socks and wait in the 'comfortable' pre-surgery chairs. The info-mercials were doing my head in - a cunning plan I think, to lower your resistance to leaving the waiting room. Double jaw surgery sounds better than listening to another segment on those amazing steam mops that defy belief - Oh and they are so easy to use, see how they simply glide across your floor!

I met my anesthetist and after a quick last minute squeeze of the Rock's hand, I centred myself and walked to my future. A quick look back, a wave and the doors closed behind me. I wander into the Operating Theatre and am sat down on the operating table. They make me lie back and start asking about my veins. I notice a spot of blood on the massive lamp about 1.5 metres above my head. I point it out between discussing my prominent and hidden veins. She tells me not to worry, it's just an orange sticker. I say "No, just a little right of the sticker". I wonder about that poor girl who went in before me and how her blood made it 1.5m off of the table onto that lamp. Maybe my surgeons are just a little enthusiastic? The anesthetist sees it then and commands someone one to remove it as she puts something into the back of my hand, "You'll just feel a scratch!". I blink. The blood spot is gone. Then I am gone.

D-Day

Ok, so I feel a bit naughty, like I've snuck into my parents room snooping for Christmas presents or something. Yes I have access.... *insert evil laugh about here*.

So one of my closest buddies is having her surgery today - I actually think I'm more of a control freak than my beloved Son. So this is killing me just as much as you honey!

Waiting is never my thing, and I know its not Son's either, and me texting her every five minutes asking if anything has happened, potentially isn't helping pass the time and I'm not getting a hell of a lot of work done. In hind sight I wish I was sitting there with her and Andrew, then we could both pace together and Andrew could just watch - and potentially shake his head.

We could do some speed training down the hallway to improve my pace for my next race. We could see how many magazines we could stack, straighten pictures, we could have races on stolen nurses chairs or play paper toss! Oh we could have some fun!!! Just maybe insert another evil laugh here...

But do you know, this is the start of something great for you my friend. Today is an end of an era of bad bites!

From tomorrow, you will be getting a new smile that will be even brighter than before. If that is at all possible.

Secret Mission. Sorry can't elaborate...
All I can tell you is, we weren't succesful!
But boy did we have fun.
We will both be able to 'chew' our snacks when we are super vets sitting on a mountain at midnight in a Rogaine National comp in some exotic location watching the full moon. I will still be able to distract you with talking about chicken snitzels - and if you chose to eat them - you could do so!

Very very soon, you will loose your bling and bits won't get stuck in your teeth and require "people" to engage emergency action to remove said vegetable pieces out of "the" bling.

And lastly, the thing I'm most looking forward to is that you will be able to eat confidently and remove your hand from in front of your beautiful face, so we can see your smile that lights up our souls.

When you smile - I smile!

Oh and of course, there will be many many more crazy "liquid" parties, dinner parties, celebrations for years to come!

Sonja you are in my thoughts.


Well, that killed 30 minutes.... has anything happened?

Wednesday, November 7, 2012

Take 2: 1 Day Out. Soup and Remotes Don't Mix!

I stayed at a close friend's place last night. Partly because she is in the city and close to the hospital, partly because I wanted the company and partly because she knows how to make the most amazing carrot and ginger soup and promised me a large batch for my freezer. 

So this morning, after I dumped all my things into my car (include several containers of soup) I had the luxury of being able to walk to my pre-surgery appointment. It was a great way to calm the nerves. I took in the sunshine and fresh air with the certainty of knowing that as soon as I walked in that hospital door that there was no going back. Surgery was definitely happening tomorrow.

The meeting was short, incredibly so. One last - show us your smile (you mean disfunctional bite - no need to sugar coat it) and a few mumbles and nods of the head shared amongst the doctors. Then I was asked "So do you have any questions?". Hooray! And the flood gate opened! Key new knowledge acquired today:
1) After surgery I will get wafers (kind of plates) that will be held together (top to bottom jaw) with firm elastic bands and function to control the movement of my jaw. No wires at all. 
2) I will have 2 puncture wounds on my face, as it seems they can't do my surgery all through my mouth. And I will get a short incision on my right hip.
3) Oh and NO the bling is NOT for bits of gum and skin - it's to hold the wafers in place.

It was all over in 15 mins. That all seemed a little too easy. All I had let to do was find out what time I had to arrive at hospital tomorrow. Of course I had to wait until 1:30pm to ring Surgery Admissions to find out - that is 4 hours away!!! YES, pure agony to a control freak.
 
I wandered back to my friends house only to discover that the soup had leaked all over my driver's seat, the keys and the gate remote. Funnily enough Carrot and Ginger soup inside of gate remotes cause them to stop working! I thought that I might be trapped inside this car compound forever (why were there no sensor pad?). I would miss surgery all because of this damn slippery soup - at least I would have something to eat for a few days. 
Yes, I finally calmed down, stopped pushing the button a 100 times a minute and finally rationally pulled the remote apart, clean it, reassembled and on my way! At least it killed 15minutes of the 4 hours!

I need to be at the hospital at 7:30am. I am the second cab off the rank, with my Surgery going ahead around lunch time. So only 5 hours to sit and wait - I hope that not too much of that time is in a backless gown!

The RULES:
No food after midnight - I may turn into a Gremlin. I told them that I am more likely to turn into a Gremlin by actually withholding food but they wouldn't listen!
No liquid after 6:30am.
No jewellery.
Wash with soup only.
Wash your hair.
No moisturiser, no deodorant! 

Thanks to everyone for your support and well wishes! It is so gratefully received!

Tuesday, November 6, 2012

Take 2: 2 Days Out - New Bling and Waiting for a Phone Not to Ring

Check out my new Bling.... Today I got Surgical hooks! A mouth full of lovely metal balls and rods, one between each pair of teeth. My tongue is having a field day exploring all these new foreign objects and the insides of my lips and cheeks are already ulcering in protest - yes, sure, I guess I could have tried talking less! 

The lovely trainee sitting in on my appointment this morning asked her more experienced colleagues what the surgical hooks were for. One of the dental assistants knowledgeably replied that "They are used during surgery". 
Fearless Trainee: Yes, but what for? 
Dental Assistant 1: Silence and a pointed 'look'
Dental Assistant 2 (attempting to save the day): They are used to hang bits of gum and skin on.

WTF?!?!? Thank goodness you're not doing my surgery young lady!!! Fairly sure they help line my teeth up when creating my new functional bite....but what would I know.....gum racks they are!
Oh yes - please  ignore the bling for a moment and note the unaligned and non-functional state of my present bite! Awesome!

So with my accessorising session complete, I had to focus, get busy and finish getting organised. I worked my way through a large list of things to do, including making soup to freeze. I whipped up a delicious pumpkin soup and a truly kick-arse leek and potato soup - see recipe pages. Sure my hands were exceedingly busy but to be honest, I essentially spent the ENTIRE day praying that my phone didn't ring. Any phone call could be Cranio Facial cancelling again. 

Have you even been on an awesome first date? You swap numbers and then you sit and you wait. Wait for him to call...... Well times that agony by about 103 million. Waiting for a phone NOT to ring is pure torture!!!

It's now less than 12 hours until they can no longer cancel on me. No trauma gets to trump me if I make it to my pre-surgery appointment at 9am tomorrow. At that point there is no going back.
I am liking my odds. Somewhere in my mind I had expected it to be cancelled again. But it's going to happen this time! It's really going to happen!
Holy Crab!

Thursday, November 1, 2012

Take 2: One Week Out

And so the counting down begins again!
Surgery is only one week away. A mere 7 days!
The anxiety is building....
Will it be cancelled again? What if it isn't?
Argh!!! There is so much I still have to do. There is so much I still have to eat.....


Time to write a list....